SWAN UK supports families affected by a syndrome without a name – a genetic condition so rare it often remains undiagnosed. They are the only dedicated support network for these families in the UK and are run by the charity Genetic Alliance UK
Their aim is that every family gets the support they need, when they need it, regardless of whether they have a diagnosis or not.
They work with UK based families of children and young adults up to 25 years old who are searching for a genetic diagnosis.
This drop-in is held during our breakfast hub. Children’s play toys are available to keep the little ones entertained and you can enjoy breakfast and unlimited refreshments for £2 per person (under 5s eat free)